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Join our community and stay connected! You'll receive practical advice and personal stories, as well as pertinent news and information regarding research and educational programming for people touched by GBS|CIDP and variants of the condition. If you submit a question or request below, we will respond within 2 business days or as soon as possible.
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GBS|CIDP Foundation International
375 East Elm Street, Suite 101
Conshohocken, PA 19428
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I can't find some who treats these conditions
I am having issues with my current facility
I have been to different neurologists and my condition is rapidly getting worse
How do I receive a referral to a COE?
In-between time from Hospital but patient not ready for therapy?
Other
My PT / OT is not working
I need help finding the right PT / OT
I need help with Pain Management
Diet and Exercises
I need more information on Skilled Nursing vs PT / OT facility
PT / OT and Fatigue
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Differing Diagnosis Opinions
Need a second opinion because my neurologist is not helpful
Other
I need help regaining strength and/or managing fatigue
Physical exercises to treat residuals
Pain and Fatigue Residuals
Eye Residuals
Hand Residuals
Feet Residuals
Other
Alternatives to IVIG treatment
How treatment works and what to expect from recovery
My first IVIG treatment failed. What do I do now?
My treatment is not working
Other
Shingles
Flu
COVID 19
Tenanus / T-DAP
Astra Zeneca
Astra Zeneca
Booster
Other
Studies focusing solely on MMN
How do we find out about research studies?
Clinical trials or treatment that is available for GBS
Clinical trials for taking vaccines
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Options outside of US
Is IVIG treatment expensive?
Financial assistance if denied by copay programs
Other
Need of Government Assistance
I need help with my medical bills
Assistance to offset some living expenses
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I need help transporting my wheelchair
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Medicare supplement policies that might support in home IVIG infusions
Medicare is not covering my treatment
Other
Where is my local chapter?
Are there any local virtual meetings?
Other
Parent of child dealing with these conditions
Other
Survivors who have made a full recovery to encourage others
Other
Adaptive Devices
Help with living with this condition
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Support groups
Spanish Speaking Survivors
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I want to get involved. What can I do?
What is your next event for me to sign up for?
What opportunities are there for volunteering?
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Inquiry Information
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Medical
Financial
Support
Topic of Interest
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Center of Excellence Referral
Physical / Occupational Therapy Referral
Undiagnosed / Misdiagnosed
Residual Symptoms
Available Treatments
Vaccines
Clinical Trials and Research
Other
Local Chapter Meetings
Youth and Teens
In-Person Visits
Advice on Condition
Story Sharing
Foundation Events / Information
Other
Financial Resources - Treatment/ Co-pay
Financial Resources - Insurance
Financial Resources - Mobility Aids
Medicare / Medicaid Coverage
Other
What is your question?
Please select...
I can't find some who treats these conditions
I am having issues with my current facility
I have been to different neurologists and my condition is rapidly getting worse
How do I receive a referral to a COE?
In-between time from Hospital but patient not ready for therapy?
Other
My PT / OT is not working
I need help finding the right PT / OT
I need help with Pain Management
Diet and Exercises
I need more information on Skilled Nursing vs PT / OT facility
PT / OT and Fatigue
Other
Differing Diagnosis Opinions
Need a second opinion because my neurologist is not helpful
Other
I need help regaining strength and/or managing fatigue
Physical exercises to treat residuals
Pain and Fatigue Residuals
Eye Residuals
Hand Residuals
Feet Residuals
Other
Alternatives to IVIG treatment
How treatment works and what to expect from recovery
My first IVIG treatment failed. What do I do now?
My treatment is not working
Other
Shingles
Flu
COVID 19
Tenanus / T-DAP
Astra Zeneca
Astra Zeneca
Booster
Other
Studies focusing solely on MMN
How do we find out about research studies?
Clinical trials or treatment that is available for GBS
Clinical trials for taking vaccines
Other
Options outside of US
Is IVIG treatment expensive?
Financial assistance if denied by copay programs
Other
Need of Government Assistance
I need help with my medical bills
Assistance to offset some living expenses
Other
I need help transporting my wheelchair
Other
Medicare supplement policies that might support in home IVIG infusions
Medicare is not covering my treatment
Other
Where is my local chapter?
Are there any local virtual meetings?
Other
Parent of child dealing with these conditions
Other
Survivors who have made a full recovery to encourage others
Other
Adaptive Devices
Help with living with this condition
Other
Support groups
Spanish Speaking Survivors
Other
I want to get involved. What can I do?
What is your next event for me to sign up for?
What opportunities are there for volunteering?
Newsletter
Other
Other
Other Topic of Interest
Other Question
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How did you hear about the Foundation?
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GBS/CIDP Foundation of Canada
GAIN: Guillain-Barré & Associated Inflammatory Neuropathies
The Inflammatory Neuropathy Support Group of Victoria Inc.
The Guillain-Barré Syndrome Association of NSW
GBS Support Group NZ Trust
GBS Selbsthife Berlin
Fundación Luz Argentina
CIDP Italia APS
IPOPI: International Patient Organisation for Primary Immunodeficiencies
PPTA: Plasma Protein Therapeutics Association
EURORDIS: Rare Disease Europe
PLUS: Platform of Plasma Users
UNITAR: United Nations Institute for Training and Research
OMAR: Rare Disease Observatory
AMR: Rare Disease Alliance
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